Update 1/13/2011

Day 22:

It is hard to believe that this is the start of week 3 for us at the hospital, but it is and this is our reality.  We are still trying to hang out in the PICU and stay stable so they can hold off on washing her left lung until next week when her doctor gets back from a conference.  Shelby is doing pretty good except yesterday she had a bad day.  Started out with her telling me NO NO NO everytime we had to do something.  Then it escalated to her trying to hit me and kick me.  I looked at her nurse and told her that Shelby needed some quiet time.   I turned off the lights and in no time she was fast asleep.  Then a doctor came in and woke her up and she was worse after that.  Finally, her nurse put a sign on the door and we banned everyone from coming in the room, including doctors.  After a 2 hour nap she woke up and was still in a mood and this time she acted like she wanted to swing at the nurse.  I got in her face and told her if she didn't start to act nice I was going to spank her.  The nurse looked at Shelby and told her that she was going to make mommy go bye bye since she was so mean to me.  The nurse actually kicked me out of her room.  She told Shelby she was trying to save her from a spanking.  I thought it was funny and for all of those who know me personally know that I will not tolerate that behavior and I will beat that ass!  So I came back about 30 minutes later and she was asleep.  Then her Daddy walks in and she is a perfect angel which just makes me want to choke her :).  I know what you all are thinking :  "Poor Shelby... she has been through so much she deserves to have a bad day... blah blah blah"  .  As I told Billy, I may not be able to control her health issues and make her healthy, I know she is spoiled and that other people will spoil her just for the fact that she has been through so much.  But, I refuse for her to act like a spoiled little brat.  She is going to have these health issues all of her life and that does not give her the excuse to act like she has no home training.  It made me feel good when her nurse looked at me and said I was doing a good job raising her.

So after sleeping all day yesterday, Shelby decided she was going to stay up all night and party like a rock star.  She stayed up until 2am.  She is in the PICU because she needs special oxygen requirements and she is by far the healthiest child in here so the nurses just eat her up.  Especially when she is talking, laughing and carrying on.    Today should be interesting to say the least.  I hope no one wakes her up today but we will have to see how it goes.

As for the health issues, everything is staying the same.  They are keeping her on the same oxygen levels and monitoring her hemoglobin to make sure she doesn't need any transfusions.  Every one is anxious to do the other lung washing so we can see how well this actually works for her and hopefully we will be on the downward slope and will soon be able to go home.  Today physical therapy is going to come and get her walking around some, hopefully they will come this afternoon and not in the morning. 

This morning all of her previous nurses have come in to check on her and to play with her.  I am glad that they all love her so much and that she is their favorite.  It is cute how they have nick named her and fight over who gets to take care of her today.